June 2002 - The increase of email inquiries for information, plus the decrease in phone and postal mail requests has prompted the Treacher Collins Foundation to no longer make the Newletter available through postal mail.

INSIDE THIS ISSUE:

* Alliance Gala

* Littlest Eve

* Book Review

* News from New England

* Frequency of TCS

* Opportunities to Respond and Educate

* Resource Exchange

* Genetic Update - Diagnostic Predictions and TCF Position Statement

* The Piperato's

* Upcoming Meetings

* New TCF Materials

* MasterCard Update

* 1995 Donations to TCF

DISCLAIMER EDITORIAL POLICY

TCF does not endorse any of the hospitals, teams, treatments, devices, products or opinions reported on in this newsletter. TCF accepts original articles but reserves the right to edit or refuse publication at the discretion of the Newsletter Editorial Committee.

This information is intended only to keep you informed. Opinions expressed are the responsibility of the author and are not necessarily those of TCF, unless so indicated.

We strongly suggest that you address your questions to your healthcare professionals.

The Medical Information Bureau (MIB) is a private database financed by 650 insurance companies to keep medical records on millions of Americans. Insurance companies can access the database to obtain information useful for denial of life or health insurance, or to boost premiums on "high risk" people. Under an agreement with the Federal Trade Commission, consumers can now obtain a free report from MIB and challenge any incorrect or incomplete data in their file. Some of the information gathered by MIB comes not from people's medical records, but from public sources such as a motor vehicle department, which reveals your driving record. Once erroneous information is on a file at MIB, it is often repeated on other records if a consumer doesn't realize that MIB was the conduit. The MIB can be contacted at: