
The Treacher Collins Foundation is an organization of families, individuals, and medical professionals who are interested in developing and sharing knowledge and experiences about Treacher Collins Syndrome and related conditions. A national voluntary health organization, the Foundation seeks to support, inform, and network families and individuals with these conditions and to serve as a resource for current information about Treacher Collins Syndrome. Established in 1988, the Treacher Collins Foundation provides medical referrals, educational materials, and information on other service providers who are familiar with Treacher Collins Syndrome. Recognizing the value of mutual peer support, the Foundation cites networking as a primary goal. In addition, the Foundation promotes medical research activities aimed at improving the quality of life of people with Treacher Collins Syndrome and related disorders. Specific educational materials produced by the organization include a newsletter, booklets, bibliographies, vocabulary lists, and resources and referral lists.